I think I did pretty well to get out of hospital without three things; a wheelchair, walker, or walking stick. Although weak, I was determined to shuffle along on my own two feet no matter how long it took to get to my destination.
Recently, I’ve been struggling to walk and could’ve done with the aid of any of the above! Yep, I feel like a bit of a Granny.
A crushing, searing bone pain has really been affecting my hips – particularly the left one. It’s an un-nervingly familiar pain. Not an arthritic kind of ache – a definite, stabbing pain deep into the joint. I say familiar, because along with fatigue and unexplained bruising, this bone pain was the first sign of my MDS which quickly turned into Leukaemia. Before we knew what it was I was being treated by a Rheumatologist who thought my bones were sore from my previous chemotherapy and gave me cortisone injections to try and ease the pain. No amount of steroids were going to help!
My next Bone Marrow Biopsy, which will show any worrisome activity, is a week away. Until the results are back, I’m choosing just to enjoy every single day. With no anxiety, stress or panic. As I’ve said many times before – I can not control this, but I can control how I deal with it.
Poor results from the BMB is worst case scenario. Next in line is Avascular Necrosis of the hip/s. In layman terms, the blood supply to the bone is affected and the bone dies.
I had an X-Ray yesterday showing my hips look okay. Apparently that’s entirely possible even when AVN is present. Both my GP and Haematological Oncologist suggested this might be my problem. Unfortunately, treatment includes a total hip replacement. I’m having an MRI in coming days.
Encore Performances 
Leave a comment