Encore Performances

Certainly not me, or anyone who knows me well.

12 months ago to the day, it was just like any other day (Friday) at work. I was fulfilling my role as News Director dealing with the station’s operational requirements, then methodically assessing releases, doing interviews, editing grabs, writing content, pulling together rundowns and presenting news during the drive show (I was covering Ange’s leave in this timeslot) with Mal Lees and Luke Bradnam.

The 6pm bulletin came and went – at the end of which, Luke – with whom I’d worked since day one at Hot Tomato, casually said (whilst still on-air) “so that’s it Katie, another week?” My response was an off-the-cuff “…yeah, this is my last bulletin with you guys”. “Whadda ya mean? EVER?” Luke quizzed. “No, I’m just off for a couple of weeks, on leave”, I replied.

I was going to have those bi-lateral lumpectomies on the Monday. Surgery booked. No big deal. Just wanted the lumps out.

Despite the four months of backwards-and-forwards, different scans, mammogram, biopsies etc. I think there were two things going on at that point; I may have known deep down there was a lot more than just a fortnight’s leave in store, and perhaps – somewhere in my consciousness I did realise that yes – that may in fact have been my last bulletin.

There’s part of me that is still obviously grieving for that ‘some sort of normal’ that I was so comfortable with. I do miss being on-air – it’s a tremendous buzz and something I worked very hard at, I always tried to do well, then do better.

Today however, as I mourn that particular career (and let myself indulge in a little moment of ‘geez, it’s sad…..I really loved it’), I began a trek down another path. I did my first media interviews as the spokesperson for the Gold Coast office of Cancer Council Queensland. Here am I answering the questions rather than asking them, crafting a response in order to push a key message, rather than searching for a compelling and easy to understand statement (grab), and having a good old belly laugh at the irony!

With the help of my oh-so-funny physiotherapist Tanya – things are slowly getting back on track.

Tanya has very quickly cottoned onto the fact that I’m a determined and somewhat pig-headed kinda girl. When I’m ‘in the zone’ things at pilates go well, when I can’t shake a headache or don’t really feel like doing a particular exercise (for very good reason of course!), there’s no making me.

We share lots of laughs while navigating our way through exercises including ‘elephant’, ‘nasty tummies’ and ‘pole dancing’!

It’s actually become a bit of a family affair, with Paul joining us once a week and having survived her initial consultation – my Mum will also be coming along on a regular basis.

To be brutally honest – I’ve never truly understood why so many people were willing to say ‘good riddance’ to the year just passed. Guess that shows I’ve had a pretty good life.

This year however, is obviously quite different. I can’t say I wont be happy to see the end of 2009. That attitude seems wasteful in some respects, but whilst I’ve learned many (some very hard) lessons this year, now I know is the time to draw a line in the sand. (I must admit to feeling a sense of profound grief for those who have recently been diagnosed. If only we could spare them from some of the heartache – particularly at this time of year.)

Tomorrow – Paul and I will embark on a holiday to tropical Port Douglas. We’ll be out of our beautiful, but somewhat cage-like home for a whole two weeks. And better still we’re going to spend some time with our friends Jason and Jodee and their toddler son Jake.

The whole ‘parenthood’ and ‘family’ thing is in fact quite a big deal. Some of my most precious friends (Summer, Clinton, Renae, Jas & Jode) are now Mum’s and Dad’s. For some of them, this wonderful gift has occurred during my little journey. My treatment for breast cancer has only highlighted the fragility of human life and also the difficulties one can and sometimes must face in endeavouring to achieve this feat. Without putting too finer point on it – can’t help feeling a little sad. In the space of nine months your world can be turned upside-down – for each extreme of the human condition.

Happy New Year everyone. More than anything – I hope it brings you perfect health and with that, the ability to savour all the joy life has to offer.

By now you’ve probably worked out how sincerely grateful I am to those involved in my care – both medical and personal. I’ve also mentioned how often I’ve been reminded that ‘help is only a phone call away’.

Earlier this week the Practice Manager from Dr D’s (a very likable, knowledgeable and busy woman!), took the time to give me a call. (She’s also a very private person – so let’s just refer to her as ‘J’.)

J told me both she and Dr D were a ‘bit concerned’ about me, following my last visit ‘my smile just didn’t have the same spark’. I guess the emotional strain showed no matter how brave a face I tried to put on.

After asking if there was anything they could do, J asked what it was that I was having difficulty with. ‘Is it the implants – the fact you have something foreign in your body?’, ‘Is it the changes that have occurred to your body?’, or ‘Is it the fact there was a big ‘C’ in front of everything?’. (Did I mention how experienced this woman and her staff are?) My honest response was ‘no drama with the implants, but probably a combination of the other elements’.

The reality check is clearly underway (might I add J had warned me about this months ago – actually the day before my mastectomies) and I’m doing my best to ‘get a grip’. From her experience women usually ‘fall’ or ‘crash’ while the expanders are in-situ. Perhaps it’s a bit delayed in my case as I went back to work and tried to keep everything as normal as possible during that time. As J afforded me the opportunity to touch on how the diagnosis and treatment has affected every area of my life (personal and professional relationships, my career, physical fitness etc.), she reminded me that my prognosis is very good and reassured me that I’d done everything in my power to ensure that is the case.

I was also offered assistance in arranging to speak to a counsellor – if I wanted to (‘not saying you need to – but just if you’d like to’).

At this point, I’m pretty sure that (and anti-depressants – not that she mentioned them, but a Dr or two may have), wont be necessary. I told J I had my head on straight and know this is just a phase of ‘adjustment’ (big time!). I’m certain of this, in part because I’m so confident in the people alongside me on this journey.

J’s caring and compassion, the generous giving of her time and sharing of her knowledge is, I’m sure you’ll agree, above and beyond what one might expect. Another very special person, doing extraordinary things in her daily life, to help people like little old me. Sometimes, life can throw these curve balls that end up exposing you to some wonderful human beings. This, is just another example.

*You may notice I haven’t said ‘Thank you’ here. This is quite deliberate. Every time I try to express my thanks to J (and Dr D and Andrea for that matter), I’m met with a very humble ‘that’s not necessary’. Guess by the footnote – you can see I think it is!

It’s fair to say that a cancer diagnosis can bring out the best and worst in people.

Granted – those who have travelled with me since April 23 this year (even back as early as January when I initially went to the Dr about the first lump), have seen the best and worst in me. For the not-so-nice displays of ‘cranky-pants-Carlyle’ – I apologise.

While fessing-up about my highs and lows, let me add there have been times when dealing with others has created a ‘mood’.

Everyone warns you that ‘people don’t know what to say’, they ‘find it hard’ etc. etc. Okay – I get it. What I don’t get is some of the irrational responses and completely insensitive comments some individuals either blurt out or concoct (perhaps in the hope of saying ‘the right thing’, but failing miserably as it just ‘came out wrong’). A clanger delivered with a very straight-face recently was that my four surgeries and the trauma my body has been through was really ‘controlled butchery’. Now – my initial shock quickly turned to an image of Dr D working delicately with scalpel in hand. I’m not too stupid to think that certain elements weren’t very ‘nice’, but comparing his expertise to that of a bloke slicing your lamb cutlets – I felt was a huge insult, to him! Secondly – as I, in my own way, deal with the fact that my breasts have been removed to rid myself of cancer and try not to feel, well mutilated – could this person not have chosen more suitable words? (or just shut the hell up!)

There’s been some remarkable examples of caring, understanding, kindness, thoughtfulness, generosity and compassion from not only my nearest-and-dearest, to new ‘cancer’ or ‘boob’ friends – and also complete strangers. (Like the parking attendant who waved me through with no charge every Wednesday morning after my 3hr session at the Cancer Council. She recognised my ‘floatie’, having used one herself while battling breast cancer years earlier.)

To all of you who have been so wonderful – my sincere thanks. To those who have found it difficult and at least tried – thank you too.

It’s become apparent I’ve entered the ‘transition phase’.

No longer am I attending appointments with Dr’s etc. on a very regular basis, no longer am I being poked and prodded, needled and taped. Now – it’s back to life as normal. Just gotta sort out what’s ‘normal’!

Apart from getting on with the day-to-day side of things, there’s actually a fair bit to work through. On speaking to people with cancer, who’ve had cancer, who’ve looked after people as they negotiate their way through ‘cancerworld‘, I’ve discovered I’m fitting the classic mould of being a bit ‘lost’. There’s a kind of hole, that above mentioned care and care-givers once filled.

You undoubtedly become attached to those who are just doing their jobs looking after you. That emotional investment is huge. It’s trust, it’s confidence and belief that you’ll make it through just fine because you’re in the best hands. Rather than feeling scared or anxious at each appointment – I actually felt safe.

Now I’m ‘out the other side’, it’s almost as if that safety net has been taken away. (I do know it hasn’t though. I’m reassured at every turn that help is available should I need it!)

As I get my head around what’s happened, how my body has changed and ultimately how my life has changed through this experience I plan to continue writing. There are so many people I’ve met on this journey who have enriched my life very much. I hope to share more about them on this blog.

It’s six weeks since my reconstruction and things are as they should be. I’m still wearing the post-op bra day and night for support. Under the tape – the scars are healing well, that burning pain where the internal stitches were has eased and I’m moving about more freely. The only pain I experience now is when I’ve stretched out too far to reach something, picked up something too heavy or ended up sleeping in an uncomfortable position. Although I can’t feel most of my chest area, feeling is starting to return down my sides and underneath, where the bottom of the bra finishes.

My muscles feel pretty weak, my overall fitness has definitely declined and while I’m trying to get it back by going on walks or doing a few kays on the stationary bike – I’m frustrated at how much that relatively light exercise is taking out of me. Having a nap each day isn’t always a choice – sometimes Paul & I’ll be chatting and he ends up having a conversation with himself!

My appointment with Dr D yesterday was a bit emotional. We ticked off all the important boxes, but spent a bit of time discussing the big picture. It’s obvious my head is now catching up with what the body’s been through.

I’d really like to say how thrilled I am with the ‘new set’ etc. but, I’m not. Pardon me for seeming rude. I’m happy enough – just not jumping for joy. Those who’ve been following my story know how grateful I am, so please don’t take any of this the wrong way. I’m not excited about my ‘breasts’. Let’s be clear – they are, as Dr D promised, the closest he could get to a natural breast mound. The implants are being accepted by my body, are sitting well and look perfectly fine with clothes on.

The reality for me now is to adjust. As I look in the mirror (being thankful for the incredible effort so many people have made to get me to this point), the scars and new shape is a big change to my body. What I must acknowledge is that change = I don’t have cancer. I guess coming to terms with that will probably start to happen now I’m out the other side of treatment.

My greatest fear is that the dreaded C will come back in either the minimal breast tissue I still have, or somewhere else. I don’t intend to let that fear dictate how I live my life from hereon in.

Dr D encouraged me to gradually get back into everything – including swimming! I’m tempted to get in and go crazy (especially seeing as we’re now in the warmer months!), but have promised I’ll be sensible. By that I mean I’ll take it easy for 4-6 months before beginning training for the Masters Games next October. Wont that be a great way to celebrate? For now, my celebration will be to just lay back and enjoy being surrounded by the water.

Making informed decisions has been so important throughout these past seven months and quite obviously – knowledge is key.

Now I’m through all the big stuff, I’m viewing some of the information through different eyes.

As you know, my diagnosis was DCIS – not the standard ‘invasive’ breast cancer and at times I’ve found it a bit hard to explain (& I’m sure some of you have been left scratching your heads!)

The following link provides what I think is a really comprehensive look at DCIS – everything from symptoms to diagnosis, treatment and follow-up.

As it explains clearly – there are many factors to consider. The ones that had a real impact on my course of treatment were;

• Age – 31 (crucial point -under 35 or 40)
• Location – Multifocal
• Grade – Intermediate
• Hormone Receptor Status – Oestrogen positive
• Sentinel Node Biopsy result – no involvement of lymph nodes

It also touches on phantom breast pain. So as you read with amusement – have a laugh at my getting used to the fact there are no nipples, when my body is screaming the left one is still there!

breastcancer.org/symptoms/types/dcis/

Here’s another one;

nbocc.org.au/breast-cancer/about-breast-cancer/what-is-ductal-carcinoma-in-situ-dcis

As far as the big picture goes – I know there are some women I’ve met on my journey who have been on/are currently on a similar ride. So, I thought I’d also include links to some other websites I have found helpful and I’m sure you will too.

To those on the support side – there’s a wealth of information for you to digest as well. One area I’d like to highlight is under the ‘My Directory’ tab at The Warwick Foundation.

mcgrathfoundation.org.au

nbocc.org.au

nbcf.org.au

bcna.org.au

cancerqld.org.au

thewarwickfoundation.org.au

Happy browsing!

Perhaps this will one day make the whole mastectomy & reconstruction experience less traumatic for the thousands of women who have to go through it because of cancer.

Scientists to trial breast regrowth Technology Telstra BigPond News and Weather